In addition to the family caregiver guides listed below (English, Spanish, Chinese, and Russian versions are available by clicking each More link), there are three specific guides for health care providers to help you understand the family caregiver perspective. These are:
The How to Get the Most from the Next Step in Care Website guide was created to help all users understand and easily navigate the website and its unique features.
The First Step in Care: Becoming a Caregiver (pdf, 140KB) — 1 in 5 adults in the U.S. is a family caregiver. Are you 1?...More
HIPAA: Questions and Answers for Family Caregivers (pdf, 142KB) — This guide provides an explanation about HIPAA (Health Insurance Portability...) More
Your Family Member's Personal Health Record (pdf, 92KB) — This personal health record is designed to help you keep your family member's... More
Medication Management (pdf, 175KB) — Many people take a lot of medications (also referred to as “drugs” or “meds”). This is especially true of someone... More
Medication Management Form (pdf, 120KB) — This form allows you to keep track of all important information about your family member's medication... More
Emergency Room (ER) Visits (pdf, 192KB) — The Emergency Room (ER) experience can be overwhelming and confusing. This guide includes ways to... More
Advance Directives (pdf, 144KB) — Advance Directives are documents that tell others, especially health care professionals which medical treatments... More
Hospice and Palliative Care — This transition can have a profound impact on the family caregiver... More
Hospital Admission: How to Plan and What to Expect During the Stay (pdf, 128KB) - An admission to the hospital is a difficult and confusing experience whether planned for or due to an emergency... More
What Do I Need as a Family Caregiver? (pdf, 585KB) — Going home from a hospital or rehab requires planning. As a caregiver you may assume ... More
Hospital-to-Home Discharge Guide (pdf, 69KB) — Discharge from hospital to home can be hard for all involved. Your family member may be very... More
Going Home: What You Need to Know (pdf, 332KB) — Going home is a big step for you and your family member. You need lots of information to make this.... More
A Brief Guide to Home Care (pdf, 58KB) and Home Care: A Family Caregiver's Guide [detailed version] (pdf, 97KB) — When you take... More
Planning for Inpatient Rehabilitation (Rehab) Services (pdf, 216KB) — If your family member is in the hospital for an acute illness or injury or for surgery... More
Admission to Inpatient Rehabilitation (Rehab) Services (pdf, 186KB) — This guide will provide you basic information about the rehab setting... More
Going Home after Rehab (pdf, 174KB) — Discharge from a rehabilitation (rehab) facility to can be hard for all involved and requires planning. You need to... More
When Short-Term Rehab Turns into a Long-Term Stay (pdf, 118KB) — If your family member is in a rehabilitation (also known as “rehab”) center or...More
What Do I Need as a Family Caregiver? (pdf, 585KB) — This form includes important questions that will help family caregivers and the nurse or case manager... More
A Brief Guide to Home Care (pdf, 58KB) and Home Care: A Family Caregiver's Guide [detailed version] (pdf, 97KB) — When you take... More
A Family Caregiver's Planner for Care at Home (pdf, 422KB) — This form helps you understand the kinds of home care services your family member... More
When Home Care Ends (pdf, 56KB) — Planning for the end of home care services is very important. You and your family member will need to plan.... More
What Do I Need as a Family Caregiver? (pdf, 585KB) — Going home from a hospital or rehab requires planning. As a caregiver you may assume ... More